Privacy notice for participants of study titled: “Normative data for visual perception
Version 1.1, 23th June 2022
Durham University’s responsibilities under data protection legislation include the duty to ensure that we provide individuals with information about how we process personal data. We do this in a number of ways, one of which is the publication of privacy notices. This privacy notice provides a general description of the broad range of processing activity in addition there are tailored privacy notices covering some specific processing activity.
To ensure that we process your personal data fairly and lawfully we are required to inform you:
· Why we collect your data
· How it will be used
· Who it will be shared with
We will also explain what rights you have to control how we use your information and how to inform us about your wishes. Durham University will make the Privacy Notice available via the website and at the point we request personal data.
Our privacy notices comprise two parts – a generic part (ie common to all of our privacy notices) and a part tailored to the specific processing activity being undertaken.
PART 1 – GENERIC PRIVACY NOTICE
Please access our General Privacy Notice online.
PART 2 – TAILORED PRIVACY NOTICE
This section of the Privacy Notice provides you with the privacy information that you need to know before you provide personal data to the University for the particular purpose(s) stated below.
Project title: Normative data for visual perception screening test
Types of personal data collected and held by the researcher and method of collection
Personal data will be collected through an online questionnaire and vision task. This will your date of birth, gender, handedness, ethnicity, country of residence, education level, information on your vision, any psychiatric or neurological conditions you may have, and your performance on visual perception tasks like recognising pictures and reading a text (see information sheet for details). Your name, address and IP address will not be collected.
The lawful basis we are relying on is public task: the processing is necessary for an activity being carried out as part of the University’s public task, which is defined as teaching, learning and research. The condition for processing special category data (e.g. information on your health and ethnicity) is that it is necessary for archiving purposes in the public interest, scientific or historical research purpose or statistical purpose.
How personal data is stored:
All personal data in electronic form will be stored on a password protected computer. Identifiable data will not be available to anyone outside the research team. Any meta data such as when or where you completed the tasks will be stored separately from the other data to minimise the risk of identification by triangulation.
How personal data is processed:
The data will be used to find out how difficult our tasks are. For instance, it will help us find the difficult words in our reading task or the pictures that are hard to recognise. The information about your health and other biographical information such as your age and gender will allow us to find out if certain pictures or certain words are particularly easy or difficult for certain groups of people (e.g. older people with eye conditions).
Durham University is committed to sharing the results of its research for public benefit. The non-identifiable data from all people taking part will be grouped together in a database that is publicly available for use in future research studies.
You can withdraw from the study until you have completed all tasks and the questionnaire. Because we do not collect data on your identity (e.g. your name or contact details), it will normally not be possible for us to locate your data after you have completed the study. We will however consider requests to withdraw your data on a case-by-case basis and might be able to locate and delete your data is you can give us sufficient information about yourself (e.g. data of birth, gender, country of residence) and when you completed the study (date and time). Your data can no longer been withdrawn once the research is published, or when
the database is made publicly available.
Who the researcher shares personal data with:
De-identifiable data from all people taking part will be grouped together in a database that is publicly available for use in research studies.
How long personal data is held by the researcher:
The data will be deposited in a public archive.
How to object to the processing of your personal data for this project:
If you have any concerns regarding the processing of your personal data, or you wish to withdraw your data from the project, contact Dr Kathleen Vancleef at
Contact Dr Kathleen Vancleef at firstname.lastname@example.org